Research
The patient association is run by patients affected by side effects and does not have any affiliated doctors/researchers. However, we keep a close eye on the development of studies, both nationally and internationally. In Denmark, there is no research yet into the causes of vaccine injuries and their recovery. We therefore refer to international research in this regard for the time being.
As with any other research, researchers disagree on the results. We only link to published, peer-reviewed research.
We would like to encourage the Danish Health Authority, the Danish Medicines Agency, the State Serum Institut and the European Medicines Agency (EMA) to start taking the research being done in this area seriously.
You can read more peer-reviewed studies and publications on the international patient association's website here.
(It is possible to search for diagnoses or symptoms among the files, as well as filter the search results by category and subcategory.)
You can also read more peer-reviewed studies and publications that our Australian partner Coverse has collected here. (It is also possible to search for diagnoses or symptoms among the files or filter the search results based on a category.)
CONSULTATIONS AND EVALUATIONS
The association received on May 27th this consultation letter from the Danish Health Authority. We are pleased that the patient association is on the consultation list.
Until the patient association's consultation response becomes available on the consultation portal at the end of August, you can find both The Danish Health Authority's draft and the patient association's consultation response as well as attached attachments here on the website under:
Read more –> Meeting minutes –> Medical Technology Assessment of Covid-19 vaccination.
Parliament has requested that knowledge about the management of side effects after Covid vaccination be included in the report prepared by VIVE (The National Research and Analysis Center for Welfare). VIVE is conducting a scientific evaluation of the Covid management.
LIVE invited the patient association and has received the association's documentation of the lack of assessment, treatment and recognition of the patients. We are happy to contribute to the evaluation, both with our documentation from Denmark and from the rest of the world via our international organization covidvaccineinjuryalliance.org (CVIA).
Without politicians' insistence on this national evaluation, the opportunity to be heard would not have arisen.
We are grateful that patients also have a voice in this important evaluation and it is our hope that this can pave the way for the necessary help and support for patients and their relatives.
The association has answered questions 7 and 8 in the document.
HELP US GATHER KNOWLEDGE ABOUT VACCINE SIDE EFFECTS
We have prepared a questionnaire survey on side effects and the status of the patients' situation, for association use. This form was developed with the aim of highlighting the seriousness of the side effects, the challenges the patient group experiences in the healthcare system and the situation it leaves the patients in.
You can also participate in international research through the international patient association's website here.
SIDE EFFECTS
The list of symptoms reported as possible side effects of the Covid-19 vaccines is very long.
The symptoms may occur immediately from the time of vaccination or start after a period of time.
Although vaccine-injured individuals (those with severe and/or persistent illness following their vaccinations) appear to have many side effects in common, the combination of symptoms tends to be unique from patient to patient. So there can be a big difference in which side effects you experience and also which treatment you need, regardless of whether you have received a Covid-19 vaccine from Pfizer, Moderna, AstraZeneca or Johnson & Johnson.
Below you will find an overview of the symptoms our members struggle with.
Click on the icons to see the different categories.
chest pain, myocarditis,
pericarditis, tachycardia, bradycardia,
high blood pressure, low blood pressure,
blood clots, heart failure,
brain hemorrhage, retinal detachment,
blackouts, poor blood supply to
fingers/feet, Raynaud's syndrome,
veins that dilate after activity,
marbling on legs/arms,
bruises/blood clots,
Covid toes.
encephalomyelitis), fibromyalgia,
rheumatic diseases (psoriatic arthritis,
gout, rheumatoid arthritis, muscular arthritis),
chronic autoimmune hepatitis,
cancer, aseptic avascular necrosis
with tooth loss.
decreased lung function,
long-term/chronic cough,
shortness of breath, asthma,
muscle spasms/muscle cramps/tics,
muscle spasms, muscle tension,
joint pain, clubfoot, stiff fingers,
frozen shoulder.
stomach cramps, diarrhea, hiatal hernia,
stomach acid problems, stomach ulcers,
constipation, bloating,
intestinal problems.
metabolic problems, hot flashes,
unexplained weight gain or weight loss,
menstrual disorders,
postmenopausal bleeding,
menopause/early
menopause.
frequent infections, prolonged fever,
swelling of body parts or lymph glands,
reactivation of viruses, reactivation of previous
inflammatory damage/allergies, newly occurring
sensitivities/allergies, hair loss, itchy skin,
rash/hives/eczema, shingles, erysipelas,
thickened skin in the armpits, dried mucous membranes in
mouth, blisters in the mouth, burning mouth syndrome,
nails that groove/flake/become strange,
M component detected, inflammation of connective tissue,
hyperinflammation, chronic inflammation
in jaw tissue, anaphylactic shock.
post exertional malaise, lack of energy,
tiredness/fatigue, sleep problems, disturbance
of temperature regulation, dizziness/vertigo,
sound sensitivity, light sensitivity, concentration and
memory problems, sensory disturbances
(tingling, prickling, cold sensations, burning
sensation in the skin/scalp/body etc.)
facial paralysis, numbness around the eyes,
paralysis of body parts, body shaking/tremor/dystonia,
reactive depression/anxiety, no stress tolerance,
hearing loss, lost/changed sense of smell/taste,
vibrations in the body/ear/brain, dysphagia,
constant feeling of lumps in the throat, loss
of reflexes in the legs, balance problems,
loss of mobility.
See React19's expanded list of persistent side effects from their patient-based questionnaire survey here.
