Welcome to

The Association for Adverse Reactions – Covid19 Vaccination

The association's purpose is to work towards the recognition, investigation and treatment of side effects after vaccination against Covid-19.

The purpose is also to increase knowledge about and disseminate complications after vaccination against Covid-19.

The association is not political and does not appear to discuss the handling of Covid-19 or vaccination in general.

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NYT – GENERALFORSAMLING 2025

Patientforeningens medlemmer inviteres hermed til generalforsamling Søndag d. 30. november 2025 kl. 15.
Generalforsamlingen foregår online.
Alle medlemmer af patientforeningen modtager et link til Zoom, dagen før. Det kan være en fordel at oprette en påmindelse for begivenheden på sin telefon.
Vi ser frem til at se jer alle.
Du kan læse mere i invitationen herunder.

Generalforsamling 2025
CVIA medlemmer 2025
Møde SSI deltagere

NEW – MØDE MED STATENS SERUM INSTITUT 25/9-2025

Den 25. september 2025, mødtes patientforeningens formand, Anette Lindberg Friedrichsen med Statens Serum Institut.

Tak til alle de bivirkningsramte, der var en del af EFTER-COVID undersøgelsen, og brugte deres tid og energi på at besvare vores spørgeskema herom.

Du kan læse mere om mødedeltagerne, dagsordenen, baggrunden for mødet og referatet her:

VIVE delrapport 3

NEW – “EVALUERING AF DEN DANSKE HÅNDTERING AF COVID-19-PANDEMIEN”

Tak til VIVE for at involvere Patientforeningen i denne vigtige evaluering, der blev bestilt af folketinget.

I delrapport 3 (af 4) evalueres blandt andet vaccineindsatsen, herunder den organisatoriske håndtering af bivirkninger.

I artiklen “VIVE-rapport: Vaccineskadede blev svigtet – myndigheder kritiseres for manglende tilbud” har skribenten, fra POV International, samlet en række af pointerne om håndteringen af Covid-19 vaccinebivirkninger, fra evalueringen.

Du kan læse delrapport 3 af evalueringen her:

Høring

BROAD PUBLIC “CONSULTATION ON MEDICAL TECHNOLOGY ASSESSMENT OF COVID-19 VACCINATION”

The association received on May 27th this consultation letter from the Danish Health Authority. We are pleased that the patient association is on the consultation list.
Until the patient association's consultation response becomes available on the consultation portal i slutningen af august(udskudt), kan du find boats The Danish Health Authority's draft and the patient association's consultation response as well as attached attachments here on the website under:
Read more –> Meeting minutes –> Medical Technology Assessment of Covid-19 vaccination.

FOCUS ON VACCINE INJURIES – WHY IS IT IMPORTANT?

  1. Patients with PACVS (Post Acute Covid-19 Vaccine Syndrome) cannot currently receive the right treatment and are left to fend for themselves.
  2. Research and knowledge gathering are important in order to help PACVS patients and avoid vaccinating people who may be exposed to developing serious disease in connection with future vaccines.
  3. It is expensive for society not to help patients. They cannot contribute to the labor market and end up on transfer income, while resources in the public health system are wasted on sending patients to specialists who do not have the tools to help them. At the same time, compensation cases will grow in scope the longer PACVS patients are sick.
Dokumentarfilm

DOCUMENTARY FILM FROM ABROAD

We have collected a number of foreign documentaries about vaccine injuries on this page - all of great relevance, as they shed light on the lack of recognition, as well as censorship and legal security problems, which also exist in Denmark.

WHAT CAN YOU DO TO HELP?

We have prepared a new questionnaire survey on side effects and the status of patients' situations for association use. This form was developed with the aim of shedding light on the seriousness of the side effects, the challenges the patient group experiences in the healthcare system and the situation it leaves patients in.

We are trying to gain an overview of the content of the Patient Compensation Board's rejection of vaccine injury cases. We appreciate your help in gaining more knowledge.
You are entitled to receive compensation if you have suffered financial, physical or psychological loss. We will continue to fight for this to be respected, as we know that compensation may be necessary to afford private medicine and treatment.

Spørgeskema

Telling your side effect story can give others the opportunity to understand what it means to be affected by side effects.
It can also give others in the same situation the opportunity to reflect on their experiences and feel less alone in the fight for recognition and treatment.
Click here and fill out the form if you would like to tell your story.
It is possible to be anonymous.

If you want to help us all learn more about vaccine side effects, you can participate in international research here.

If you experience side effects after vaccination, we encourage you to report them to the Danish Medicines Agency and seek compensation. so that the authorities can get a better overview of the extent and consequences of the side effects.

Cardiovascular symptoms
Heart rhythm disorders,
chest pain, myocarditis,
pericarditis, tachycardia, bradycardia,
high blood pressure, low blood pressure,
blood clots, heart failure,
brain hemorrhage, retinal detachment,
blackouts, poor blood supply to
fingers/feet, Raynaud's syndrome,
veins that dilate after activity,
marbling on legs/arms,
bruises/blood clots,
Covid toes.
Diagnosed systemic conditions
POTS, ME (Myalgic
encephalomyelitis), fibromyalgia,
rheumatic diseases (psoriatic arthritis,
gout, rheumatoid arthritis, muscular arthritis),
chronic autoimmune hepatitis,
cancer, aseptic avascular necrosis
with tooth loss.
Respiratory symptoms
Low oxygenation of the blood,
decreased lung function,
long-term/chronic cough,
shortness of breath, asthma,
Musculoskeletal symptoms
Muscle pain, muscle weakness,
muscle spasms/muscle cramps/tics,
muscle spasms, muscle tension,
joint pain, clubfoot, stiff fingers,
frozen shoulder.
Gastrointestinal symptoms
Nausea, stomach pain,
stomach cramps, diarrhea, hiatal hernia,
stomach acid problems, stomach ulcers,
constipation, bloating,
intestinal problems.
Endocrine symptoms
Changes in the hormonal system,
metabolic problems, hot flashes,
unexplained weight gain or weight loss,
menstrual disorders,
postmenopausal bleeding,
menopause/early
menopause.
Immunological symptoms
Overactivation of the immune system, MCAS,
frequent infections, prolonged fever,
swelling of body parts or lymph glands,
reactivation of viruses, reactivation of previous
inflammatory damage/allergies, newly occurring
sensitivities/allergies, hair loss, itchy skin,
rash/hives/eczema, shingles, erysipelas,
thickened skin in the armpits, dried mucous membranes in
mouth, blisters in the mouth, burning mouth syndrome,
nails that groove/flake/become strange,
M component detected, inflammation of connective tissue,
hyperinflammation, chronic inflammation
in jaw tissue, anaphylactic shock.
Neurological symptoms
Headaches, migraines, brain fog,
post exertional malaise, lack of energy,
tiredness/fatigue, sleep problems, disturbance
of temperature regulation, dizziness/vertigo,
sound sensitivity, light sensitivity, concentration and
memory problems, sensory disturbances
(tingling, prickling, cold sensations, burning
sensation in the skin/scalp/body etc.)
facial paralysis, numbness around the eyes,
paralysis of body parts, body shaking/tremor/dystonia,
reactive depression/anxiety, no stress tolerance,
hearing loss, lost/changed sense of smell/taste,
vibrations in the body/ear/brain, dysphagia,
constant feeling of lumps in the throat, loss
of reflexes in the legs, balance problems,
loss of mobility.

Side effects among patient association members

Would you like to help the patient association create better conditions for those affected by side effects?

Here you can find an information leaflet about the patient association. Please share it online or physically, and help those affected by side effects find the association.

Folder Foreningen for bivirkningsramte Covid19 vaccination

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UPCOMING EVENTS

We will regularly hold lectures for the benefit of those affected by side effects, healthcare professionals and relatives.
You can find information about past and upcoming lectures, as well as watch recordings of the international association's webinars, by clicking the button below.

Covid-19 virus

DO YOU NEED TO TALK TO OTHER SIDE EFFECTS SUFFERERS?

If you feel alone or desperate in the fight for recognition and treatment, you are welcome in our Facebook group. The group is a support network and functions as a platform for the exchange of experiences.

If you are experiencing late effects after Covid-19 infection, you can visit the Danish Covid Association's website here.

Mødereferater

LATEST NEWS FROM THE PUBLIC

We hold regular meetings with public authorities and external professionals. You can read some of the minutes and open letters below.

20/10-2025 Patientforeningen har nu sendt et brev til folketingets sundhedsordførere, på baggrund af VIVE’s “Evaluering af den danske håndtering af covid-19-pandemien” og vores møde med SSI.
Vi opfordrer politikerne til at hjælpe patienterne.

Hvorfor henvender vi os til sundhedsordførerne?

1. Den statslige evaluering fra VIVE, fastslår i Delrapport 3, at personer med vaccinebivirkninger blev svigtet af de danske myndigheder og at bivirkninger kræver systematisk håndtering.

2. Samtidig bruges SSI’s EFTER-COVID-undersøgelse — som aldrig var designet til at måle vaccinebivirkninger — som dokumentation for at vaccinerne ikke giver langvarige bivirkninger. Du kan læse mere i referatet fra vores møde med SSI.

Vores henvendelse samt bilag ligger nu offentlig tilgængeligt på folketingets hjemmeside her:

11/8-2025 – After more than 1 year of waiting, we have received a response from The Danish Serum Institute, on the open letter we sent to the health authorities (Statens Serum Institut, Danish Health Authority and Danish Medicines Agency) on 16/7-2024. You can read the letter and the response below and find the attachments at The Folketing's website.

10/4-2025 – The association's chairman wasThe interview at VIVE on “Evaluation of the Danish handling of the Covid-19 epidemic”. We are grateful that patients also have a voice in this important evaluation and it is our hope that this can pave the way for the necessary help and support for patients and their relatives. Foreningen har svaret på spørgsmål 7. og 8. i aktstykket som du kan læse herunder. Delrapport 3 udkom i september 2025 og evaluerer blandt andet vaccineindsatsen, herunder den organisatoriske håndtering af bivirkninger.

22/3-2025 – Based on the response from the Danish Health Authority, we have sent another open letter.

“When you roll something out to the population, you obviously also have a responsibility to follow up on good things and bad things, and that also applies to those who are affected by side effects. […] And therefore it is of course important that we follow up on those who come to us and say: 'We have these symptoms after the vaccine – what do we do?'. […] So I would say, regardless of the reason why people are sick, if people are sick, it is our responsibility to try to help them. That is why we have a healthcare system.”

– Stinus Lindgren 27/5 2024
Read more from the CEPOS conference here

14/2-2025 – Member of the European Parliament Anders Vistisen asked 3 questions to the European Commission on behalf of the patient association on 29/11-2024. We have now received answers to these. You can find the questions and answers below (opens on the European Parliament website).

11/12-2024 – Patients are still waiting for evaluation and treatment.
We therefore find the Minister of Health's response to Epidemic Committee questions (No. 9-16) worrying. That is why we have now sent an open letter to Minister of Health Sophie Løhde.

25/7-2024 – The Danish Health Authority believes that the responsibility for treating PACVS patients lies with the general practitioners and specialists in the 5 Danish regions, who, however, are rarely able to help the patients. Therefore We have sent open letters to the 5 regions, with the aim of establishing qualified investigation and treatment. You can read the letters and the response below.

Covid-19 vaccine

In May 2024, we sent a letter to the Director of the Danish Health Authority, Jonas Egebart, with a number of pressing questions about the handling of vaccine injuries. You can read the letter and the response, as well as the reaction from one of the country's leading vaccine researchers below.

"I would like to take a stab here at the group of citizens we have already mentioned who are currently being overlooked. And these are the citizens who have experienced a new illness after vaccination."
[…] they are stuck in limbo because we don't know enough about the side effects. No one knows how to take care of them.
They have not received recognition for their side effects.
They don't get any help and no treatment. We can't be that familiar. It's indecent and it's something that I think we have to take on our shoulders and get it lifted as quickly as possible.”

– Christine Stabell Benn 3/5 2023
Hearing in the Epidemic Committee on learning from Covid-19. See the presentation here

FOCUS ON VACCINE INJURIES

21/10-2024 – Below you can find previous newsletters, as well as the latest news from the association's chairman. If you would like to receive our newsletter by email, you can write an email to us. here.

You can read stories from those affected by side effects here.

As more studies are published about the Covid-19 vaccines and their associated side effects, unfortunately there is not the same increasing focus on vaccine injuries in the media. We have collected all Danish articles here on this page.

We participated in the People's Meeting in Odsherred 2025. The patient association's chairman Anette Lindberg Friedrichsen held a presentation together with professor and researcher Christine Stabell Benn. We thank Christine for sharing her knowledge with us and the audience. We also thank the participants of the people's meeting for the many good questions. We are pleased that the topic - vaccine side effects - is no longer as sensitive a topic to talk about among the general population. You can read more about the presentation below.

2/10-2024 – Chair of the patient association, Anette Lindberg, was interviewed on The Richie Allen Show on the occasion of “Covid injury awareness month” which extends throughout October on social media. #PurpleOut #IAmNotMisinformation #CovidVaccineInjuryAlliance

We participated in the People's Conference 2024 on Bornholm. You can read more about our presentation by clicking the button below, and watch ØTV Bornholm's interview with our chairman below.

Source Ø-TV Bornholm